The Coordinator-site

Neurology Department – Adolphe de Rothschild Foundation

29 rue Manin 75019 Paris
Coordinator: Dr Aurélia POUJOIS
Secretariat: Edith DEBOISVILLIERS
Telephone: +33 1 48 03 62 52                                                                Fax: +33 1 48 03 62 53                                                                          Email: cnr.wilson@for.paris

With

• Neurologists: , Dr Aurélia POUJOIS, Dr France WOIMANT, Dr Erwan MORVAN
• Medical Secretary: Edith DEBOISVILLIERS
• Nurse: Marine SALTRE
• Clinical Research Associate responsible for the French register and for monitoring research studies: Djamila RAHLI
• Physiotherapists: Reeducation Team
• Speech Therapist: Cécile TARABON-PREVOST
• Psychologist : Thibaut JOSSE
• Psychiatrist: Dr Diane SEMAMA
• Social Worker: Stéphanie MOREL-LEDER
• Dietetian: Vincent PETIT
• Communications Officer: Mélanie ROULLEAU

Patients with Wilson’s disease can be managed at the Adolphe de Rotshchild Foundation through either:

1. Standard consultations with neurologists
2. Multidisciplinary consultations with a neurologist, physiotherapist, speech therapist, psychologist and/or social worker. For patients who suffer from speech and/or swallowing disorders, a speech therapist and phoniatrist may take part in the consultation.
3. Admission to the Day Hospital or an inpatient ward.

For patients who suffer from dystonia, treatment with botulinum toxin may be proposed following multidisciplinary evaluation, by Dr Aurélia POUJOIS.

Molecular Biology investigations are carried out by Dr Corinne COLLET.

Assessments of copper parameters (including exchangeable copper and the REC: ratio of exchangeable copper/total copper) are performed by Dr Nouzha DJEBRANI OUSSEDIK and Dr Joël POUPON.

The files of all patients are discussed during clinical-biological staff meetings with Drs Corinne COLLET (Molecular Biologist), Nouzha DJEBRANI OUSSEDIK and Joël POUPON (Toxicologists specialised in analysing heavy metals, including copper).