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Awareness meeting on the Wilson’s disease

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Download the programme for the day

Download the invitation letter

Download the reply coupon


Annual Meeting of the CNR WilsonPicto reunion CNR couleur

The next Annual Meeting of the CNR Wilson will take place on Friday 24 June 2016
At Hôpital Lariboisière from 10:00 to 16:30.

The morning session will be dedicated to the General Meeting of the French-Speaking Society for the Study of Wilson’s Disease.

Download the programme for the day

Download the proceedings of the day


The Centres for Rare Iron Disorders and Wilson’s Disease are organising a

National Symposium on Rare Heavy Metal Diseases

on Friday 23 January 2015, in Paris

This symposium on heavy metal diseases is intended for physicians, biologists and paramedical personnel. It will provide an opportunity for an update on rare diseases related to heavy metals. The presence of experts in these different areas will enable debate on the numerous metabolic, clinical, biological and even radiological links between copper, iron, zinc or manganese, etc.

Download the programme and registration form
colloque maladies rares
If you would like more information, please contact: emeline.ruano@aphp.fr


Meeting of the National Reference Centre for Wilson’s Disease
17 June 2014

The next meeting of the National Reference Centre for Wilson’s Disease will take place

on Tuesday 17 June in Paris, from 13:00 to 17:00 at Hôpital Lariboisière.


WILSTIM study

(Approved by the Ethics Committee on 15 January 2014)
If, in the context of your Wilson’s disease, you find it difficult to write (with your right hand), the WILSTIM study may perhaps interest you!
This study is trying to test the efficacy of a new treatment for dystonia of the right hand.

If you would like to take part in this study and obtain more information,
please contact us!

cnr.wilson@lrb.aphp.fr or 01 49 95 65 27

wilson-crlyon.eh@chu-lyon.fr or 04 27 85 59 81

Download details of the study protocol


rare disease day


Results of the « EuroWilson 2012 » patient questionnaire

Following an initial questionnaire in 2011 which was designed to improve the management of patients with Wilson’s disease and better understand their needs and expectations as well as those of their families, a new questionnaire was compiled in 2012. This focused in particular on the diagnosis and treatment of Wilson’s disease patients.

Download the results


International symposium in London, 5/6 October 2012

The centenary of Wilson’s disease

1912 – 2012

100 years since the first publication on Wilson’s disease

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A presentation to the Paris Neurology Society during its meeting on 25 January 1912

PROGRESSIVE LENTICULAR DEGENERATION: A FAMILIAL NERVOUS DISEASE ASSOCIATED WITH CIRRHOSIS OF THE LIVER by S.A.K WILSON, MD, MRCP which gave rise to an original paper in the Revue de Neurologie and a publication of more than 200 pages in BRAIN. To mark this centenary, the British Association for the Study of the Liver organised an international symposium in London on 5/6 October 2012.

Download the summary of the symposium


European Wilson’s Disease Congress in Paris, 14/15 November 2011
Organised by EuroWilson and the CNR Wilson

European Wilson Congress

Download the congress programme